Cauda Equina Syndrome Support and Advocacy – The UK’s Only CES Charity header image

Cauda Equina Syndrome Support and Advocacy – The UK’s Only CES Charity

Cauda Equina Champions Charity is a patient-led organisation supporting those with the condition, and their families, with a wide range of bespoke services.

Explore Contact Us
Community CTA image

Community

Creating a resilient, empowered and positive community of patients and their loved ones
Education CTA image

Education

Educating people about the signs and symptoms as well as potential outcomes
Support CTA image

Support

Supporting those with the condition to live their best lives following diagnosis

Download our Publications

The CaudaEquina App

A free, comprehensive tool to help patients manage their condition, track symptoms, and access trusted information and support.

Read about our Product Innovation Award Win

WITH YOUR HELP WE CAN

Empower those living with Cauda Equina Syndrome

Promote positive recoveries and best outcomes for everyone image

Promote positive recoveries and best outcomes for everyone

Ensure that every single case of cauda equina syndrome is recorded image

Ensure that every single case of cauda equina syndrome is recorded

Facilitate and champion the seamless triage of patients throughout their experience image

Facilitate and champion the seamless triage of patients throughout their experience

Reduce delayed treatment and end all unnecessary suffering image

Reduce delayed treatment and end all unnecessary suffering

CAUDA-EQUINA-martins-story

Read Martin’s Story

Read how our support contributed to saving the life of Martin Brown after his shock CES diagnosis.

Read More
Become a Member section image

Become a Member

A worldwide community of more than 9000 people that live with CES, or love someone that does. Join our Official Champions Charity support group today.

Join Our Community

We are here to help!

Call our Helpline

Call our Helpline

Help us support those that need help

Please Donate

Donate

Testimonials

Andy

“The Champions Charity CES online support group has helped me no end.

I left hospital after my emergency operation, with no aftercare and not really knowing what to expect. Having this group has helped me when I’ve had extremely down days and when I have questions about anything.

I would have been lost without the support I have had and will be forever thankful.”

Online support group member

Doctor

“Very helpful session and so glad we were able to hear more about this serious condition. It has definitely changed the way I will approach back pain as a presentation.

I and the other students are grateful the patients invited were happy to share their story and shed light on others”

Student Doctor

Doctor

“This was fantastic!

It opened our eyes about the importance of a low threshold of suspicion and how tests like MRI  must be performed urgently.

Really valued this lecture. So important to hear the patient’s perspective.

Very memorable”

Student Doctor

Lecturer

“Many thanks for your session yesterday, the students and I found it extremely beneficial and very moving.

The students have asked if you can send some posters and leaflets as they are very keen to spread the word.

After you left the discussion resumed on the next session with some students saying how powerful they had found the poem and how the session had been so thought provoking”

Senior lecturer

Online support group member testimonial image

“CES literally turned my world upside down. I was no longer the run around spin addict, instead I became the wheelchair loner.

I lost my friends and my social life and spent a year living away from my children. If it wasn’t for the support group I wouldn’t be here.”

Online support group member

Online support group member testimonial image

“I am so lucky to have met such wonderful and positive people with a can-do attitude, it really feels bliss to have people around me going through a similar journey. Everyone in the group is willing to share their experience and knowledge.

It gives you so much positive energy and increases your determination to keep going and focusing on goals.”

Online support group member