Our charity team is proudly made up of people with a lived experience of cauda equina syndrome and disability. We work hard to deliver an empathic and supportive service as we know how important it is to be able to speak to someone who really understands what you are going through. We are working hard to make a difference in the hope that you can have a better quality of life, one that is happy and fulfilling.
Cauda Equina Champions Charity was founded by Claire Thornber, a former cauda equina syndrome patient (2010) and a leading advocate for people living with the condition worldwide. Having experienced first-hand the isolation, uncertainty, and challenges that come with CES, Claire established the charity after her CES injury, to ensure that no one has to face the journey alone. Her passion is to provide support, guidance, and hope to everyone affected by CES, whether they have been newly diagnosed or have been living with the condition for many years.
Claire lives in the North West of England and spends her time running the charity and supporting other charities, sharing the knowledge she has gained through her work. Claire has two daughters and is a proud grandma to Penelope.
Paige joined Champions Charity as someone with experience of the impact of cauda equina syndrome on families and children, following her Mums diagnosis several years ago. Paige works with charity partners and the NHS to develop important networks for cauda equina patients. She organises our events and bookings.
Paige lives in Lancashire with her family. She is passionate about helping others understand the impact CES can have and working to reach patients as soon as possible to reduce trauma and feelings of isolation.
Paige is really looking forward to bringing you lots of exciting projects and events in the future.
Orla joined Champions Charity in April 2026 and is the newest member of the team. She has quickly developed a strong understanding of CES through meeting individuals affected by it. This has given her valuable insight and strengthened Orla’s passion for supporting the charity’s community.
As assistant psychologist, Orla supports clients and co-ordinates referrals to our therapy services. She is committed to providing compassionate, person-centered support, with her long-term goal being to complete a Doctorate in Clinical Psychology. This will enable her to make a meaningful difference to the mental health and wellbeing of others.
We have various roles available if you would like to volunteer for our charity. You may be a fantastic fundraiser or want to help other people affected by CES through our peer support service – fill in the form opposite and a member of our team will be in touch to tell you more.
