Our CES Buddy peer support service offers people affected CES direct support from somebody who has first-hand experience of what it is really like to live with and adjust to a new life after diagnosis.
We want you to know you are not alone and our CES Buddies are here to help. They can advise you about how to access support within the NHS and answer the many CES questions you may have.
They can support you regularly via email or phone. If you would like to speak to one of our Buddies please ring our Helpline and ask one of our team to put you in touch.
Howard
My name is Howard and have suffered with Cauda Equina and the resulting issues associated with this awful condition for 18 years. I had…
Lisa
Hi! My name is Lisa. I am Mum to Rachel and wife of Andrew. I have had Cauda Equina Syndrome since April 2016 and it…
Mark
I’m Mark, Living in the Cradley in the Black Country. I have had CES for 4 years and 1 month at the time of…
Robyn
Robyn is our Liverpool support group meeting host and also works as a CES Buddy offering support to people who are newly diagnosed who…
Steve
My name is Steven and before CES I had a fit healthy, active life and married with 3 children. I was a police officer…
Tina
My journey with Cauda Equina Syndrome (CES) was nothing short of devastating. One moment, I was the happiest I had ever been, and the…
Victoria
I had my surgery in 2009 and struggled with the unknown. Once I found the CES facebook, I realised I wasn’t alone. That in…